Hi! We're the Wilder family!

J.B., the government contract guy,
Sarah, print shop owner and jewelry gift shop owner
Jake, the too smart for his own good, goofy six year old,
and Eliza, the determined and sassy three year old.

In November of 2014, we found out we were expected our second child. We were so excited to meet our newest addition! Halfway through my pregnancy, we found out that our baby was a sweet little girl and that she would be born with spina bifida and hydrocephalus. Enter Eliza in August of 2015. She has rocked our world for the better. This blog is dedicated to all things Eliza. Watch her conquer it all!

 What are spina bifida and hydrocephalus? From the Spina Bifida Association...

"Spina bifida is the most common permanently disabling birth defect in the United States. Spina bifida literally means “split spine.” Spina bifida happens when a baby is in the womb and the spinal column does not close all of the way. Every day, about eight babies born in the United States have spina bifida or a similar birth defect of the brain and spine. Over 250,000 Americans are in the spina bifida community. 

A child with meningomyelocele spina bifida usually is operated on within two to three days of birth to close the opening in the spine. This prevents infections and helps save the spinal cord from more damage. The effects of spina bifida are different for every person. Up to 90 percent of children also have hydrocephalus (fluid on the brain) and must have surgery to insert a shunt that helps drain the fluid — the shunt stays in place for the lifetime of the person. Other conditions can include full or partial paralysis, bladder and bowel control difficulties, and severe latex allergies. People with spina bifida learn how to get around on their own by using things like crutches, leg braces or wheelchairs.

Thanks to new medical treatments and technology, most people born with spina bifida can expect to live a normal life.  People with spina bifida have many special challenges because of their birth defect, but their condition does not define who they are."

To contact me, feel free to email livealittlewilder@gmail.com.
To check out my regular lifestyle blog, visit www.livealittlewilderblog.com

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